Saturday, April 17, 2010

Frustration (an Understatement)

To say the very least, the last few days have been extremely draining on Mom, Dad and Kathlin. They have done an amazing job of handling a very difficult and sensitive situation. To make a long and infuriating story much shorter, Santa Clara Valley informed the insurance company that Kevin is "no longer making progress” (even though the therapists asserted he is). The insurance company then decided that Kevin is no longer fit for acute rehab and notified us that Kevin would be sent home next week. Let me reiterate… Kevin is improving, but he still can’t do much by himself. He is not fit to return home. Valley wanted to use the last week of Kevin’s time in the hospital to train Kathlin, Mom and Dad how to be Kevin’s nurses and therapists (occupations that take years of training and cannot be learned in a week). Also, Kevin would still be receiving chemotherapy past the date they wanted to kick him out of the hospital.

The worst thing: when the hospital told the insurance company that Kevin was “not progressing,” the insurance company decided to deny any future acute rehab. As I wrote in the previous post, we strongly believe that Kevin needs acute rehab to continue improving and to keep his fighting spirit going. Acute rehab is still medically necessary for Kevin. Dad managed to successfully explain this to one of the insurance company's doctors. As a result, the insurance company has taken back their decision to deny any further acute rehab. Thanks to Dad’s hard work and the amazing cooperation of the acute rehab unit at Dominican Hospital, Kevin will be transferred to Santa Cruz early next week.

Kevin likes this decision. He commented, “the food’s better at Santa Cruz, anyway.”

In addition to this unpleasant hospital/insurance situation, a few nights ago, there was an accident while an aide helped Kevin transfer from a wheelchair to his bed. The aide didn’t situate their legs in the correct stance, and Kevin’s right leg slipped and was injured. His right leg—his “good” leg—is now sore and swollen. X-rays and ultrasounds have shown that this is most likely a pulled muscle—there are no broken bones, and the blood clot should not be the cause of the pain. However, we’re frustrated beyond belief that on top of everything else going on right now, Kevin has to go through yet another unexpected painful event.

In other news, the editor-in-chief of the Colgate newspaper wrote a column about Kevin’s situation, the editor’s own health problems and the power of friends’ and family’s support in times like these. You can read the article here. Paul Kasabian, the editor, has hit the nail right on the head; all of your love and support has helped us in innumerable ways. Thank you, for the umpteenth time, to each and every one of you who keeps Kevin in your thoughts.

12 comments:

Anonymous said...

We understand all about insurance, rehab, going home. You want your loved one to get to rehab ASAP. Your hopes are high. Then they tell you rehab is over; time to go home. It is one big journey of hope, anticipation, the unknown. Kevin is on the next phase of his journey, it seems. Good luck and Godspeed, Kevin, Rich, Carolyn, Stacy, and Kathlin. Love, Christine and Kim

AA said...

Medical mistakes are incredibly frustrating, especially something that seems so simple in the first place. At least the insurance thing seems to be mended, for now...

Anonymous said...

I assume that all of you are at your wit's end regarding the insurance situation. I suspect that you have either pursued the idea of getting government representatives involved or decided that it wouldn't do any good. Occasionally a Congressman or Senator can help out in what might seem to be an impossible situation.

Colleen said...

That is a wonderful article in the Colgate paper. I hope Kevin's leg heals up and he enjoys the food in Santa Cruz.
Thinking of you all every day and hoping and praying for progess, no matter how small or visible. Keep fighting Kevin. Sending love, Colleen Brown

Anonymous said...

Kevin,
My man, I cannot describe in words how much it to me meant to visit you today. It's amazing how in a few simple words, you revealed the same wisdom and virtue that you always had. Keep up your remarkable strength and determination, buddy. I miss you already.

Love,
Max

PS Please make sure Kevin sees this

toni runyon said...

Kevin. You just focus on getting better where ever that may be. May being closer to your home town of Aptos and that good salt air and ocean breeze bring you that extra strength you need with your chemo therapy. The promise of better food is certainly something to look forward to.
You have so many people sending positive thoughts, massive amounts of love and prayers your way. Feel that power and let it get you through this.
Love from Toni and Steve Runyon

Unknown said...

What a frustrating few weeks! What wonderful perseverance on Rich's part, and what incredible support from Kathlin, Stacy, Carolyn and Rich! You all remain in my prayers, and I am so very inspired by all the things that made the excellent Colgate story ring so true. Kevin, there are many of us behind you cheering and blown away by all you are accomplishing. Hopefully you really will enjoy the food better in Santa Cruz. I'm sure friends and puppy will love having all of you closer to home!

Jason said...

It sounds like it has been an incredibly frustrating stretch, but I'm glad to hear that underneath it all Kevin is seeing some progress. It's great to hear your sense of humor come through with the food comment, Kevin! Keep that positive attitude through it all and I know you'll go far. Each one of you amazes us every day. I wish you could see the incredible support you have pouring out from everyone around here!

Best wishes from Colgate,
Jason

Anonymous said...

What a great article in the Maroon News. I hope you all know even though we are so far away you are all in our thoughts and prayers. Much love to Kathlin, I miss her! Keep the faith. Tracy

Romain Lazerand said...

hey guys, keep up the good spirit. i talked to tyler earlier, and as he sets up an email account for kevin, tyler and i would like everyone who reads this blog, or is on our facebook group to:
take a 30sec to 10 min video (not like an hour, the files will be too big) of anything you would like and feel like it would remind kevin of you. it can be you on the webcam goofing off and supporting him, or one of us dropping in on a wave or in kirkwood. anything that relates to a bond between you and kevin and his family.
i will have the mail address very soon, and what tyler and I will do is compiled all the videos being sent and either post them on our facebook group or make a DVD for kevkev to watch whenever.

Stacy, good job on keeping the blog up, as soon as we got the email address ill let you know. thank you for all the hard work. say hi to the family :)

keep strong, we are all behind you.

Love
Ro

Anonymous said...

Chocolate shakes in Santa Cruz? Where do we begin?
Welcome home Kevin and his family. I agree, the smell of the ocean should be a great tonic.

We're with you everyday.

Sharon Anderson

Hollis said...

Just read about Kevin and Kathlin and your family in the Colgate Maroon News. I live in the Hamilton area and know many folks -- too many, including my wife, and an old and dear friend -- who have dealt with cancer. My heart goes out to you.

Kevin and Kathlin may not be at Colgate now or in Hamilton, but know that the people here in their "second hometown" are thinking of them. And, not just folks on The Hill. All of us understand your angst.

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