Another Chemotherapy

With the recent news of further tumor growth in mind, Kevin’s chemotherapy schedule has increased from once every two weeks to once every week. This additional chemotherapy, however, is seen more as a temporary “stop-gap;” it is not something that will work over a long period of time. We are hoping this will buy us some more time to research other possible options. The neuro oncologists seem to be running out of ideas for treatments, which is very disheartening. However, we’ll take anything that may buy Kevin a bit more time.

Some of you may be thinking about the fact that Kevin’s actual diagnosis was “better” than the original. True, medulloblastomas are more successfully treated than glioblasotmas. However, we have heard from other neuro oncologists that inoperable medulloblastomas, especially in pediatric cases (which Kevin basically is) tend to act like glioblastomas. That is, chemotherapy and radiation treatments often don’t do much to kill the tumor. It breaks my heart to report it, but this is exactly what we’re seeing in Kevin’s case.

We have all been focusing on living day by day and appreciating the little things that we can. Kevin still can’t talk and has been using the letter board to communicate, but he has watched the webcam and heard the voices of a few of his closest friends who now live far away. He’s also been able to eat some milkshakes and other pureed foods that he’s been craving. He assigned the Butterscotch Swirl milkshake from Marianne’s 4 ½ stars—I guess he really enjoyed that one! Kevin also requested a New York style cheesecake and homemade Almond Roca from our very culinarily gifted neighbor. To our surprise, he was able to chew and swallow small pieces of Almond Roca. Immense motivation can produce some stellar results!

Thank you all for hanging in there with us throughout this rollercoaster journey. Maybe it’s more of a haunted house ride with a track that winds through the dark and takes giant drops, always catching us by surprise. We have desperately needed your support, and we still need it now. Please send Kevin good wishes and prayers. Thank you so much for your love and support.